Télécharger Orphan Lung Diseases: A Clinical Guide to Rare Lung Disease de Vincent Cottin,Jean-Francois Cordier,Luca Richeldi Livre eBook France
Télécharger "Orphan Lung Diseases: A Clinical Guide to Rare Lung Disease" de Vincent Cottin,Jean-Francois Cordier,Luca Richeldi Pdf Epub
Auteur : Vincent Cottin,Jean-Francois Cordier,Luca Richeldi
Catégorie : Livres anglais et étrangers,Medicine,Internal Medicine
Broché : * pages
Éditeur : *
Langue : Français, Anglais
Télécharger Orphan Lung Diseases: A Clinical Guide to Rare Lung Disease de Vincent Cottin,Jean-Francois Cordier,Luca Richeldi PDF Ebook En Ligne
Orphanet ~ Orphanet produces a series of highly-downloaded reports showcasing aggregated data covering topics relevant to all rare diseases. This series includes a list of rare diseases, reports on epidemiological data, list of orphan drugs, rare disease registries in Europe, list of research infrastructures useful to rare diseases in Europe, Orphanet's annual activity report, and Orphanet's satisfaction .
Nontuberculous Mycobacterial Lung Disease - NORD (National ~ A diagnosis of nontuberculous mycobacterial lung disease is based upon identification of characteristic symptoms, a detailed patient history, a thorough clinical evaluation and a variety of specialized tests. However, the diagnosis can be challenging because the characteristic signs and symptoms are highly variable and nonspecific. A diagnosis of NTM includes ruling out other diseases such as .
Orphanet Journal of Rare Diseases / Home page ~ Orphanet Journal of Rare Diseases is an open access, peer-reviewed journal that encompasses all aspects of rare diseases and orphan drugs.The journal publishes high-quality reviews on specific rare diseases. In addition, the journal may consider articles on clinical trial outcome reports, either positive or negative, and articles on public health issues in the field of rare diseases and orphan .
Idiopathic pulmonary fibrosis / Genetic and Rare Diseases ~ Idiopathic pulmonary fibrosis (IPF) is a condition in which tissues in the lungs become thick and stiff, or scarred, over time. The lungs then lose their ability to move oxygen to the brain and other parts of the body. Common symptoms include shortness of breath and a dry, hacking cough.
Finding Funding Opportunities / Genetic and Rare Diseases ~ Medical research funding is essential for developing new diagnostic tests and treatments for rare diseases, but it can be difficult to learn about funding opportunities. The following list of resources can help medical researchers find funding sources from the National Institutes of Health (NIH) and advocacy organizations.
About LAM / The LAM Foundation ~ Lymphangioleiomyomatosis (lim-FAN-je-o-LI-o-MI-o-ma-TO-sis) is a rare lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system and kidneys. Unregulated growth of these cells can lead to loss of lung function, accumulation of lymph rich .
List of Rare Disease Information - NORD (National ~ NORD’s Rare Disease Database provides brief introductions for patients and caregivers to specific rare diseases. Medical experts and representatives of patient organizations who would like to assist NORD in developing reports on topics not currently covered in this database may write to [email protected] .
IPF / boehringer-ingelheim ~ Respiratory. Boehringer Ingelheim has over 95 years of heritage in respiratory disease. Since 1921 we have emerged as a leader in this disease area, having launched several treatments in a range of respiratory conditions including asthma, chronic obstructive pulmonary disease (COPD), idiopathic pulmonary fibrosis (IPF) and lung cancer.
BREATHE / the lung association ~ Throne Speech: Resolve to make lung health a priority gives us hope The Canadian Lung Association is encouraged with the federal government’s continued, strengthened commitment to the lung health of Canadians, as expressed in the Throne Spe >
Home - NORD (National Organization for Rare Disorders) ~ NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.
Restrictive vs. Obstructive Lung Disease ~ Restrictive lung disease most often results from a condition causing stiffness in the lungs themselves. In other cases, stiffness of the chest wall, weak muscles, or damaged nerves may cause the .
Von Hippel-Lindau disease / Genetic and Rare Diseases ~ Symptoms of von Hippel-Lindau (VHL) disease vary among patients and depend on the size and location of tumors. Hemangioblastomas that develop in the brain and spinal cord can cause headaches, vomiting, weakness, and a loss of muscle coordination (ataxia).Hemangioblastomas can also occur in the light-sensitive tissue that lines the back of the eye (the retina).
Gaucher Disease - NORD (National Organization for Rare ~ A significant proportion of patients also develop pulmonary (lung) disease (interstitial lung disease). There can be wide variability in presentation and clinical course among patients with type 3 Gaucher disease. Some affected patients may live into their teens and early 20’s, while others have lived for much longer (30’s and 40’s). With increasing difficulties, affected individuals may .
Adult-onset Still's disease / Genetic and Rare Diseases ~ Adult-onset Still's disease (AOSD) is an inflammatory condition that affects multiple organs.The most common symptoms are high fevers, skin rash, arthritis, and high levels of ferritin, a protein that stores iron in the blood. Other symptoms include an enlarged spleen and lymph nodes, joint pain, and sore throat.In some cases, symptoms may be severe and lead to organ and joint damage.
Squamous cell carcinoma / Genetic and Rare Diseases ~ Squamous cell carcinoma (SCC) is the second most common skin cancer.SCC most often affects individuals who are exposed to large amounts of sunlight. It is typically characterized by a red papule or plaque with a scaly or crusted surface; it may be suspected whenever a small, firm reddish-colored skin lesion, growth or bump appears on the skin, but it may also be a flat growth with a curly and .
How Periodontal Disease Affects Your Lungs ~ Periodontal disease is a gum condition caused by the buildup of bacteria along and below the teeth's gumline. Acute forms are usually associated with pain from oral tissue gone bad – also known as necrotizing gingivitis or trench mouth – whereas chronic forms are painless but have a more long-term impact on your overall, systemic health.
Research Grant Program - NORD (National Organization for ~ In many cases, they are the only source of funding for the study of specific rare diseases. Donors may target their donations to research on a specific disorder. A minimum of $35,000 is required to fund a grant. When this target amount is reached, NORD begins the process of issuing a request for research proposals. If the target amount is not reached within a specified time-period, the funds .
FDA approves a new antibacterial drug to treat a serious ~ The U.S. Food and Drug Administration today approved a new drug, Arikayce (amikacin liposome inhalation suspension), for the treatment of lung disease caused by a group of bacteria, Mycobacterium .
Interstitial lung disease - Symptoms and causes - Mayo Clinic ~ Interstitial lung disease seems to occur when an injury to your lungs triggers an abnormal healing response. Ordinarily, your body generates just the right amount of tissue to repair damage. But in interstitial lung disease, the repair process goes awry and the tissue around the air sacs (alveoli) becomes scarred and thickened. This makes it .
Lung Cancer Signs & Symptoms / Common Symptoms of Lung Cancer ~ Most lung cancers do not cause any symptoms until they have spread, but some people with early lung cancer do have symptoms. If you go to your doctor when you first notice symptoms, your cancer might be diagnosed at an earlier stage, when treatment is more likely to be effective.
Antifibrotic Therapy Gets Orphan Drug Status for Systemic ~ Orphan drug designation is granted to medicine intended to treat or prevent rare diseases or disorders that affect fewer than 200,000 individuals.
Home / Rare Diseases Clinical Research Network ~ The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
List of Most Common Diseases and Conditions Information ~ Find relevant and reliable medical information on diseases and conditions.Find your medical topic by using the comprehensive A-Z list above, click on the browse health centers below or one of our categorized listings of health and medical conditions.
Cancer Health Center: Information on Cancer Types and ~ Lung Cancer. Lung cancer kills more men and women than any other form of cancer. Eight out of 10 lung cancers are due to tobacco smoke. Lung cancers are classified as either small cell or non-small cell cancers.